Friday, June 19, 2009


Does summer in Maine really start this weekend?? It has been raining here for what seems like weeks. I do remember one or two days of sunny 80 degree days in the last three months! Mother nature had better get her act together!!!

I cannot believe that it has been six months since my last update. WOW!! I will try to remember these past months.

We flew to Florida in March to visit Andy's parents, and Camden has 14 days of very watery stools. We contacted Boston who connected us with a pediatric gasteroenterologist in the Tampa St Petersburg area. Camden underwent labs, xrays, and two sets of stool cultures. Everything was completely normal. So we were left with no answers except is may have been a viral infection and Camden took two weeks to return to "normal".

We were in Boston for clinic in April. At that time we had not used Camden's Mik-key button for three months. His weight was steady, but not significant, so the tube stayed in:(. We had hopes that it would come out. We did switch from neocate formula to whole milk, which he did great with!!

On May 5th I got a call from the daycare to say that Camden's G tube had broken off. YIKES!!! So I called Andy and he went over to investigate. The valve had broken completely off, the balloon had deflated, but the inner part of the tube was still at skin level. So Andy took him to the Emergency Department where I met him. They contacted Dr Jaskick's office and spoke with him about the problem. When asked if they should put a new tube in, they were told to leave it out!!! The plan was to take it out in June!! So my little man is without any tubes!! The site did not even leak and is healing very well.

This week we returned to Clinic at Children's Hospital, and were pleasantly surprised that his weight was 22 pounds, 12 ounces (10.35 kilos). They also were happy to see progress on a bit of a growth curve too.

The new plan is to decrease the amount of milk per day, he is now drinking between 30 to 40 ounces of milk a day! This will hopefully increase solid food intake.

Next week Camden starts in the next classroom up at daycare. His buddy Alec is moving up with him! It is more structured, and he is with more mobile kids, rather than with the babies in his current classroom.

That should do it for now! Whew!

1 comment:

Jenna said...

Hi Camden

My name is Jenna and I came across your site. You are an amazing, precious gift and special earthly angel. You are full of courageous, strength, determination, and fight. You are a brave warrior, smilen champ and an inspiration. You are a super hero, super trooper, and a tough cookie. You are full of life, spunk, joy, smiles, and sunshine. You have taught everyone about life, and the gift of life. I love it when people sign my guestbook. I was born with a rare life threatening disease, and other diagnosis.