Boston, here we come

Camden spent one night in the hospital after his bout with influenza, unless you count the long night in the ED, then we spent two nights! We got to his room about 4 in the morning, on the 5th, and we came home on Sunday the 6th, around 1 in the afternoon. He still has a cough which at times is very congested sounding, but no new fevers. We had a quick trip to the ED this week for retractions, no fever, and home that night. We then followed up with Dr Ross the next day and checked out OK. It is so hard to tell if the pains are his gums, or his ears! Poor little man!!

Tomorrow we all head to Boston for a clinic visit. We will be staying at Hotel Hanson, and Andy will try to get to Worcester for a surveying convention/conference over the weekend. I am hoping to get Maddie to the aquarium, and maybe back to the children's museum. She is also excited to return to Children's Hospital to visit with the nurses and Lakiesha. We are also looking forward to some time visiting with family and friends in and around Boston. Nancy and Flo will be coming up for the passover weekend also, and it will be great to visit with them. Who knows, maybe Andy and I can get away for a few hours, or I can get a nap?!! It will be the first trip back to Boston for Maddie since Camden was discharged from Children's!

My plan for Boston is to talk to the clinic about the need for a multivitamin, whether or not we still need his Actigal, and if we can plead for them to pull his central line now, rather than our scheduled date in early May. I am also hoping to start decreasing his feeds at night. But every time I plan on something at clinic, so much more always happens! We shall see what new things will occur this time!!

Nighttime routines are becoming longer and longer! Every night it takes over two hours to get both Camden and Maddie to sleep. They both seem to fight the natural process of falling asleep. Maddie often cries herself to sleep, and Camden often eats himself to sleep. He wakes up frequently for the first hour or so, and his routine has returned to normal (eating and sleeping). His gums are really bother him now and he would rather chew on his hand, blanket or toy, rather than go to sleep.

Camden has also started to eat cereal and baby bananas! He takes a few bites of each then won't eat another bite. Oh well, at least it is a start!! I was hoping the cereal would thicken up his poops, but maybe he needs to eat more than a few bites twice a day! He is drinking his Neocate well too. He slowed way down for a few days after his last hospitalization, but he is back up to 5 to 7 ounces every three hours or so. At night he will take up to 7 or 8 ounces over an hour to get to sleep. This is his nightcap!