Maddie, Andy, and I are in NJ today for Thanksgiving. We are so blessed with our family and friends. Our support system has made this time in Boston so much easier. Thank you all.
Nana and Grampy could not stay away, and came to Boston from NJ Sunday, and visited until Tuesday. Grammie also stayed until Monday afternoon to visit. Andy actually returned to Boston Sunday night which trilled Maddie.
Camden has had a very busy week. Monday he had a HIDA scan, in which he was injected with radiated isotopes and scanned. After lunch, Mommy picked him up from Nana and broke his Broviac central line. Mommy quickly pinched off the line and called for the nurse. They were able to repair the line. Camden then went back to nuclear medicine for another scan of the isotopes, but no more injections. Nana and Grampy headed back to NJ with Maddie, and Grammie headed back to Maine. Andy and I spent the rest of the afternoon holding Camden.
Tuesday Andy and I spent the day at the hospital with Camden. He was holding his head up more often and even looking around. He watches his mobile and the Child Life Specialist LaKeisha, (she is amazing tool that adds to his team) brought him a mirror for his crib too. Camden even had an eye exam by the opthamologist. He passed the exam. He also had one more scan in nuclear medicine.
Wednesday morning Camden had a rectal biopsy to check motility of the colon. It took about half an hour and he tolerated the procedure well. The audiologist came for his hearing exam too. We found that Camden's hearing is muffled. He will have another test in 2 to 3 months, or before he is discharged from the hospital. If that shows no improvement, Camden will need hearing aids.
So we met with surgeons to discuss the surgery on Monday. they have saved all afternoon for the surgery, in which they will most likey do the STEP procedure, place a G tube, dilate any stricures in his colon, and a liver biopsy. The surgeon is very confident about this course for Camden. Our ultimate goal is to get off TPN and reduce the need for Tube feedings as much as possible.
So we headed to NJ Wednesday afternoon and are having a great time with family. We will return to Boston on Friday. Camden had his Thanksgiving outfit on and super assistant Sara even took photos for us. Once we download all the pics to our laptop I can figure out how to put them on the blog.
Happy Thanksgiving to all, and thanks for the prayers and thoughts.
Nana and Grampy could not stay away, and came to Boston from NJ Sunday, and visited until Tuesday. Grammie also stayed until Monday afternoon to visit. Andy actually returned to Boston Sunday night which trilled Maddie.
Camden has had a very busy week. Monday he had a HIDA scan, in which he was injected with radiated isotopes and scanned. After lunch, Mommy picked him up from Nana and broke his Broviac central line. Mommy quickly pinched off the line and called for the nurse. They were able to repair the line. Camden then went back to nuclear medicine for another scan of the isotopes, but no more injections. Nana and Grampy headed back to NJ with Maddie, and Grammie headed back to Maine. Andy and I spent the rest of the afternoon holding Camden.
Tuesday Andy and I spent the day at the hospital with Camden. He was holding his head up more often and even looking around. He watches his mobile and the Child Life Specialist LaKeisha, (she is amazing tool that adds to his team) brought him a mirror for his crib too. Camden even had an eye exam by the opthamologist. He passed the exam. He also had one more scan in nuclear medicine.
Wednesday morning Camden had a rectal biopsy to check motility of the colon. It took about half an hour and he tolerated the procedure well. The audiologist came for his hearing exam too. We found that Camden's hearing is muffled. He will have another test in 2 to 3 months, or before he is discharged from the hospital. If that shows no improvement, Camden will need hearing aids.
So we met with surgeons to discuss the surgery on Monday. they have saved all afternoon for the surgery, in which they will most likey do the STEP procedure, place a G tube, dilate any stricures in his colon, and a liver biopsy. The surgeon is very confident about this course for Camden. Our ultimate goal is to get off TPN and reduce the need for Tube feedings as much as possible.
So we headed to NJ Wednesday afternoon and are having a great time with family. We will return to Boston on Friday. Camden had his Thanksgiving outfit on and super assistant Sara even took photos for us. Once we download all the pics to our laptop I can figure out how to put them on the blog.
Happy Thanksgiving to all, and thanks for the prayers and thoughts.
4 comments:
What a cuddlebug Camden is. I even sent the others off to lunch on Monday so I could rock him by myself. Of course we got to take Madison off to NJ and she slept on her new Aerobed for Kids.
She especially loved the soft covering with crescent moons and stars all over. By now it has been rolled up and taken back to her "boston home."
Nana and Grampy are now in So. Carolina and will be in there Florida home tomorrow night. So sad to be away from our family, but Auntie Jana and Julia will stand in for us as moral support for Mom and Dad on Monday. Please say your prayers that these procedures all work and that Camden can soon be eating something by mouth and then POOPS!!
He surely loves the pacifier so still has the natural instinct to suck.
We are also so grateful and proud of all who have lent their love, support and financial help in this time of great concern for Camden, Daddy and Mommy, and Madison too.
Nana and Grampy on the Road
A, T, M, and Little C. Glad to hear your holiday was pleasant, we had a pretty good one here in Colorado. Weather is getting cold finally but not as much snow as when you were here last year. This Blog thing is a great way to pass on updates and I am glad you let me know about it. Agian if there is anything we can do please let us know. Theresa and Clem are always checking for cheap air fair so you never know when they might show up. Sending all our love.
Chris, Theresa and Clemente.
Dear Andy, Tonya, Madison & Camden,
I'm so happy to hear that you had a blessed Thankgiving day and that Camden is gaining weight and doing well.
You are in my thoughts and prayers.
Wendie Lagasse
We love the picture and I must say he looks just like his DAD. Camden is growing since we saw him in Portland, that`s a good thing.
Keep the updates and pictures coming. Take care of yourselves Andy and Tonya.
Love A.Eunice
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