Team Meeting Update

Today was Camden's team meeting at Children's Hospital. The surgeon, GI docs, nurse practitioners, nurses, social worker,child life specialist, case manager, nutritionist, etc... all sat down and discussed our plans for discharge. The first thing they all said was that Camden is doing great, they are all pleased with his progress. Then they discussed the plans for going home. Camden is medically ready for discharge, and we are talking discharge not only from the hospital, but to HOME!!

We can come back down for weekly checkups at the clinic, but we do not have stay at the apartment in Jamaica Plain. So, the discharge planners are setting up home health services, Nursing, Supplies, Pumps, Pharmacy Meds etc. for Veazie. and we have to go home at some point and get the house ready (including finding and setting up a crib!!) So we are looking at going home (all of us!!) in 2 to 4 weeks!! We also discussed conditions that we return him to Children's, ie infection, line breakage etc., what we can take care of in Bangor, many of his labs once we are only at the clinic monthly or so.

So we are starting the Discharge Checklist of Trainings, Tasks to complete, and even met today with a vendor that will supply his pumps and and most of his supplies... hopefully as time goes on we will narrow down the "Discharge Window" and we will set a mutual DATE in the days ahead.

Camden is tolerating his two bottles very well. We even clamped his G tube for most of today, and he did really well. Hopefully, we can keep it clamped for the most part now, we will have to see. His weight today was 4.17kg, up from 4.14kg yesterday.

More to come and pictures hopefully tomorrow???