So Many Friends!!

Camden is just progressing on his feeds by mouth by leaps and bounds!! He is already tolerating 6 to 7 ounces every 3 hours or so during the day! He even is starting to enjoy cereal each morning and in the afternoon as a snack, when he isn't busy getting attention from Nana and Grampy!! They have been a huge help with both kids and I may not let Jack go back to Florida... Camden eats best when Grampy feeds him.

Last Monday night was the broomball benefit for Camden. It was some of the funniest action I have seen on ice ever! The third watch team actually managed to beat the women's hockey team, but I think the boys were the most beat up! We had a great time. THANKS to all the players, sponsers, and everyone who was there! It really is nice to know so many people care about us and this little man!

Today was Camden's baby shower at Christina's in Brewer. It was nice to be able to take Camden to the party so everyone could see and hold him. THANKS to everyone for a great afternoon, and all the fine gifts!

Camden had his appointment with Dr Ross on Thursday and his weight was 15.7 pounds (7.12kg). Things are progressing to the point we may soon no longer need to visit him weekly, although we love Dr Ross! Are we making our way to a more normal life? What was that like?? I don't think I remember what life was like prior to all the doctor visits and hospitals, starting last September!?!

Update from our third trip to Boston

Camden had his third clinic in Boston last Thursday. Nana and Grampy flew in the day before. There were many changes again for the visit. We got the approval to try Camden OFF TPN and see how his weight does. If he can maintain, or even gain weight, we are planning to pull his central line on our next visit in four weeks! We also moved his tube feedings from J to G, and he is tolerating those very well. His weight is over 15 pounds, and he gained an average of 39 grams a day. Much more than the 17 grams a day goal. The team in Boston were very happy with his progress.

Jack and Sue arrived Wednesday and haven't let either of the kids go yet!! They have been very helpful with things around the house.

More to come.

Waiting for Nana and Grampy!

In only one week, Nana and Grampy will be flying north from Florida! I'm not sure who is more excited, them or us (but I know how they will answer!). Maddie talked to them on the computer tonight and Camden got to see them too. I am thinking of things for us to do with Maddie while they are here, the list is long!

Camden was very fussy today, we even gave him Tylenol around two. He also ate a lot today, three or more ounces every few hours! He seemed to tolerate the extra volume well too. Growth spurt??

I also think I feel the beginnings of a sharp point on his upper right gum... could it be?! I will have to check it out over the next few days to be sure!

I am making this short, and going to bed early. I worked the past two nights and am worn out!

Teething???

Could Camden be starting to teethe?!?! I think he may be, he loves to chew on his bottle nipples and soft toys, and loves to have his gums rubbed. I wonder when his first tooth will come in?
We are settling back into our routines after being discharged from the hospital yesterday, however, Camden is taking a little longer to go to sleep at night than he used to. May be it is his age but I wonder if his bowel is still trying to catch up with the fact that he is over an infection. He is eating more today and getting back up to three ounces every few hours.
Try to write more later... laundry calls!

We are Home!

We were discharged from EMMC today at noon. Andy then took him to Dr Ross' office for his Synergist vaccine. He is home now and sleeping in his car seat. Thanks to Mimi for helping us unpack and settle back home. His weight today was 6.355 kg, just before discharge. He will be on 7 more days of IV antibiotics and then we will redraw a blood culture from his central line. The results will determine if we need a new line, which will need to be done in Boston.
While we were in Boston last week for clinic, we changed out his G/J tube, for a new G/J Mic-Key button. It took some time to heal again, but is working well now. It was red and draining but we have been using soaks, and dressings with some silver nitrate.
Let's hope this is his only central line infection, and we can keep healthy until we can discontinue the PN and central line in a few months as planned.

out of the ICU... into the regular peds floor..

Thanks Nana for the Moose... Camden moved from Pediatric ICU out to the regular Pediatric unit.... His color is good and he is all smiles this am... slept good last night too... will try to update blog soon

Camden gets admitted to EMMC Pediatric ICU with his first fever ever...

Camden got his first gift on his first admission back to the hospital.... got a little fever last night probably minor starting antibiotics after consulting Boston will probably stay tonight here at EMMC in Bangor.... will try to update blog tonight.... Thanks to our friends at St Joseph Hospital for his "chick"