Tuesday, December 25, 2007

Merry Christmas!!


It has been a whirlwind of a week. Sorry I have not posted anything new, time is whizzing by so fast!

On Wednesday, I drove Maddie up to Portland to meet up with my mom who took her to her house for a few days (would it be horrible to say that we both needed a break from each other??). However we were late, the Boston Pops were giving a concert at the hospital. Camden even came down to the entertainment area to join Andy, Maddie and myself for a great concert! Camden even startled occasionally at the loud music!
Andy and I spent Thursday and Friday at the hospital with Camden, for about 16 hours a day! Thursday, Camden's central line stopped working and was actually leaking from the insertion site. The nurses had to start an IV to give him sugared saline, an Camden is becoming a very difficult person to stick. He has needed to be stuck numerous times for each lab draw, and the only place they could start an IV was in his scalp):. But it worked. He was put on the OR schedule for a new central line on Friday. We asked the surgeon of he could also do the circumcision at the same time (while Cam was asleep!) and the doc said he could do that too.

So, Friday we spent the morning in his room and the afternoon in the OR waiting room, where we saw another short gut family waiting for their little one to get out from the OR also. So we chatted until Camden was moved into the recovery room. The central line works great, they can actually draw his labs from it like it is supposed to. The circumcision also went well and we were happy the surgeon was able to add it on to the time in the OR.

After a short visit to Cam's room Saturday morning, Andy and I headed up to Old Town to my cousin's house. We were having a family dinner for the holidays and we were also getting Maddie from my Mom. We had a great time visiting everyone, and it was nice to spend one night in our own beds!

Sunday, we visited the staff at St Joseph Hospital where I work, then to our good friends Chuck, Becky and their daughter Robin's house. We visited Hallie, our black lab, there too! We then went over to my Dad's house to see him and his wife. His wife Lou was out of town visiting family for the day, but we watched the Patriot's game with my dad and ate pizza. We had a great visit. Maddie even received her Christmas presents from my dad... a rocking horse that whinnies and clops!! She loved it!

We then drove to my mom's house for the night. My nephews were there for the weekend and maddie wanted to play with them before she would go to sleep. We awoke Monday morning to sunshine and temps in the 30's. A good time for Andy to take Maddie and the boys outside. They dug forts in the snow and slid down a small knoll out back. Maddie then came insde and exclaimed "I need new clothes!!". My brother and his wife then came over and we opened our stockings and all the presents under the tree. Maddie loved opening each gift! After a late lunch, Andy, Maddie and I headed for Boston. We stopped at the hospital to see Camden, who spent the weekend sleeping and looking cute for the staff. Camden also had visitors on Sunday. His aunties from NJ arrived and spent time playing with him and showing them how much he had changed since their last visit.
We spent Christmas morning at the hospital with Camden. Maddie and Camden were surprised by a visit from Santa Clause!! He had a present for each of them, and we had our picture taken with him. Aunties then stooped in and Maddie opened even more gifts!! In the afternoon, Andy, Maddie and myself went over to Mark and Marjorie's. Some of her family was there, and Maddie caught up with Josh and Erica, whom she had not ween since Thanksgiving!
We opened still more presents, one of which was a princess outfit complete with jewelry and gloves, for Maddie from her aunties!! We sang songs, ate a wonderful dinner, and Maddie was of course, the center of attention! She finally fell asleep at 10pm that night after two days of Christmas!!

Camden is making slow progress toward discharge. Camden 's tube feedings have been increased to 14ml/hr, and he is getting one bottle a day of 14ml! He still loves that one feeding. His weight is almost to the 4kg club! His color is also improving...almost as pale as his mama!!

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