Too Much of a Good Thing

Camden had been pooping so well, in each diaper, but it is very watery. So, today the nurse practitioners on his floor decided to stop the tube feedings for a couple of hours to adjust his input and output. This was after I gave him his 14ml of milk by bottle (in about 10 seconds, and while half asleep!!). We had also increased the feedings to 16ml/hr, and had to reduce them back down to 14ml/hr, so his body could hopefully adjust too. (5ml = 1 teaspoon)

The good news is that he tolerated cycling off his TPN for an hour the past two days, and he was off for two hours today! The way they check to see if he is tolerated it, is to check his blood sugar half an hour after cycling off and half way through the time off. He passed today, so we will do it again each day. Hopefully this will increase to a time when we can maybe go all day without TPN and only need it at night! The step after that is to try getting him off completely!! It is a step in the right direction.

All the nurses and even Dr. Puder are amazed at how light his color his now. Last week his direct bilirubin went from 7 to 3.1 last Sunday!! What a huge difference in his alertness level too. He even smiles now, and I think he may even be close to laughing!! :) He sits up with only a little help and loves to look around. We are all convinced that he is developmentally on track so far!

The staff is also setting up a TEAM meeting with everyone involved in Camden's care to discuss what needs to happen in order for us to be discharged from the hospital, and for us to go home to MAINE!! This meeting will hopefully take place in the next two weeks!!